Lifespan Respite Summit in Support of Pennsylvania Caregivers
The Lifespan Respite Summit brought together a diverse group of forty state department officials, policy administrators, statewide resource organizations and family advocates to meet with Jill Kagan, chair of the National Respite Coalition. The focus of the summit was to take the first steps toward building a statewide lifespan respite infrastructure by learning more about the recently passed federal Lifspan Respite Bill and forumulating a guide to establish Pennsylvania's readiness to apply for future funding attached to this legislation.
The Summit was held on November 30, 2007 at the Center for Schools and Communities and was co-sponsored by the Allegheny County Respite Coalition, The Special Kids Network System of Care, and United Cerebral Palsy of Pennsylvania.
Keynote Presentation and Resources
“Lifespan Respite Care, What’s Next? How Does this Affect Pennsylvania?”
Presenter: Jill Kagan, MPH
This session provided an overview of the new federal Lifespan Respite Act, its basic tenets and requirements, implication for lifespan respite efforts in Pennsylvania, and various statewide lifespan respite models to consider as planning in Pennsylvania proceeds.
The full-length audio recording is available in MP3 format. Listen at your desk using your computer's media player such as Windows Media Player, Real Player or Quicktime or download to your portable MP3 player to listen on the go.
Audio Recording (file size: 52.3 MB, runtime: 57 minutes)
Lifespan Respite Care: What's Next? - Presentation Slides (PDF format)
National Respite Coalition Advocacy Tip Sheet for Face-to-Face Meetings (PDF format)
Lifespan Respite Care Act - December Alert (PDF format)
Fact Sheet: Model State Lifespan Respite Programs (PDF format)
Section by Section Summary of Lifespan Respite Care Act (PDF format)
About the Presenter
Jill Kagan is the Chair of the National Respite Coalition, the Policy division of the ARCH National Respite Network. Ms. Kagan has served in this capacity since 1994, promoting respite and crisis care in national and state policy and programs. Currently, she co-chairs the Consortium for Citizens with Disabilities, Child Abuse Task Force and is the founder and facilitator of the Lifespan Respite Task Force, a coalition of national, state and local organizations which promotes lifespan respite in national policy. Recently, she was honored to serve as an At-Large Delegate to the White House Conference on Aging.
